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everlastinglove_MJTopic starter

DMD - support is needed!
July 06, 2011, 06:36:17 PM
Today my kid returned worried from school and told me about a boy who has DMD (Duchenne Muscular Dystrophy). His health is deteriorating and he has to leave school. The class will do a goodbye party. It is very sad, he’s only 10 years old. My thoughts are with him and his family. Support is needed for research for a cure of DMD.

LOVE to all



Duchenne Muscular Dystrophy (DMD) is a rapidly progressive form of muscular dystrophy that occurs primarily in boys. It is caused by a mutation in a gene, called the DMD gene that can be inherited in families in an X-linked recessive fashion, but it often occurs in people from families without a known family history of the condition. Individuals who have DMD have progressive loss of muscle function and weakness, which begins in the lower limbs. The DMD gene is the largest gene to date, which encodes the muscle protein, dystrophin. Boys with Duchenne muscular dystrophy do not make the dystrophin protein in their muscles.

An estimated 1 in 3,500 boys worldwide are affected with Duchenne muscular dystrophy.

Our Mission Statement
We are embarking on a 180-day national fundraising tour that will raise funds and promote awareness of the devastating effects of Duchenne Muscular Dystrophy and to bring to light the extreme hardships children face in orphanages around the world.

On our tour, we will share our mission in the communities we visit, along with trying to secure grants and donations from corporate leaders and government programs. Additionally, throughout our journey we will hold public events that promote awareness of both these causes.

Our goal is
•To share our passion in the search for a cure of Duchenne Muscular Dystrophy and to bring as much aid as humanly possible to afflicted children in orphanages. By the end of our first fundraising tour, we hope to raise $75,000.00.
•To create a higher sense of awareness about Duchene’s Disease & Orphanages in the United States and over seas.
•To make a difference for as many kids as we can by broadening individuals horizons.

Our Vision
Our approach is simple and to the point: any good-willed gesture, no matter how small, as long as it comes from the heart, will make a difference. We so often take for granted the little things in our daily lives. It is our hope to educate more fortunate individuals about the daily tragedies faced by children with "no cure" Duchenne’s Disease and children abandoned in orphanages over seas. Through personal sacrifices and donations we hope to encourage people to give something back from their heart so that we may help as many kids as we can by the year 2012.
Why we are doing this?
We thought long and hard and our answer is...

“These children need us more than we need our jobs” and “By following our hearts, we believe we can make a substantial difference in their lives.” Yet, all of our reflection could not capture the essence of our hearts, better than this story we found about one person's desire and ambition to make a change. Imagine what we could do as communities and as a nation.
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This inspiring story is told of a small boy who was seen on a vast beach covered with starfish.

The tide was out and stranded starfish were dying on the sand.

The boy was taking the starfish one at a time and throwing them back into the sea.

A passerby, seeing the millions of starfish on the miles of shore, told the young boy to stop.

“There are so many starfish,” he said. “There is no way you can really hope to make a difference.”

The boy never stopped but as he watched another starfish splash safely into the surf he said, “It made a difference to that one.”
Last Edit: December 31, 1969, 06:00:00 PM by Guest
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